Daisy-Mae Marsh was diagnosed with a very rare genetic condition called 18p before her first birthday. The condition is caused by a deletion or ‘missing piece‘ on Chromosome 18, with about one in every 40,000 babies worldwide born with the disorder. There are many symptoms and challenges that come with the diagnosis of 18p including slow development, poor muscle tone and speech delays to name a few. Each case is unique, so for Daisy the greatest impact on her development has been her eyes.
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Daisy has undergone 3 eye operations over the past 12 months and is in urgent need of another. In order to fund the cost of immediate corrective surgery, an online Fundraiser was created last week called “Through Daisy’s Eyes”. The response was instant and in only 3 days reached its goal. Daisy’s parents, John and Rae are overwhelmed by the generosity of everyone in the community and would like to say thank you from the bottom of their hearts for every single donation that has helped their little girl now have the operation in just a couple of weeks.
